Clinical trial results Disclosure

August 10, 2014 – 05:31 am

IFPMA

The International Federation of Pharmaceutical Manufacturers and Associations (IFPMA) and its member companies maintain a longstanding commitment to transparency and support to clinical trials data sharing.

In 2005, to mirror our commitment, the IFPMA launched the first ever international web portal (called the IFPMA Clinical Trials Portal) to provide healthcare professionals, patients, and their families with an easy-to-use, single point of access to a comprehensive array of online information about ongoing and completed clinical trials of medicines and vaccines our companies develop. trials of drugs and vaccines our companies develop.

In recent years, the number of national, regional, or global searchable registries has expanded dramatically. Today, the IFPMA Clinical Trials Portal is only one of many portals available on the internet that allowaccess to aggregated clinical trials databases provided through individual governments, academic institutions, and corporate sponsors. In this context, the IFPMA Clinical Trials Portal only duplicates other existing tools and most importantly, no longer captures the significant amount of clinical trials data now made available. As a consequence, its usage has dropped considerably.

Given these developments, IFPMA has taken the decision to discontinue the IFPMA Clinical Trials Portal.

To ensure that the IFPMA Clinical Trials Portal visitors and registered users continue to have access to quality, comprehensive, and publicly-accessible clinical trials information, IFPMA will direct queries to the World Health Organization (WHO) International Clinical Trials Registry Platform (ICTRP).

With the mandate to "establish a voluntary platform to link clinical trials registers in order to ensure a single point of access and the unambiguous identification of trials with a view to enhancing access to information by patients, families, patient groups and others", the WHO ICTRP facilitates the registration of all clinical trials provided, among others, by the pharmaceutical industry, using the WHO Trial Registration Data Set.

Source: www.ifpma.org

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